tag:blogger.com,1999:blog-3761683084567008890.post6106900091125225762..comments2015-07-13T18:32:36.604+01:00Comments on Haisla's Adventures in Endoland: Post-consult thoughtsHaislahttp://www.blogger.com/profile/00447101581192623859noreply@blogger.comBlogger9125tag:blogger.com,1999:blog-3761683084567008890.post-8323763215787248112014-08-09T10:39:26.146+01:002014-08-09T10:39:26.146+01:00Thanks for your comments - they really do make my ...Thanks for your comments - they really do make my day!! : )<br /><br />Northern Star, that is really concerning. Thanks for sharing your story. The problem with the NHS is that once they've done all their infertility testing they are unlikely to yield to redoing them again. And privately the blood works would cost approx. £500. Then again knowing that your eggs are good before embarking on an IVF cycle is pretty crucial. And perhaps if I could prove through private tests that my eggs are going bad, I could pressurise the NHS to let me skip the IUI cycles.. Food for thought indeed!<br /><br />It really does suck that the NHS is so inflexible.. And thanks for encouraging me to vent. Sometimes I just feel like I must come across like a right lunatic what with all the ranty wallowing. But I guess that's just part and parcel of the whole IF package. And better out than in, huh!? ; ) xxHaislahttps://www.blogger.com/profile/00447101581192623859noreply@blogger.comtag:blogger.com,1999:blog-3761683084567008890.post-78777044674306747742014-07-19T15:41:58.618+01:002014-07-19T15:41:58.618+01:00Hi Haisla,
I have endo as well. My case is mild,...Hi Haisla,<br /><br />I have endo as well. My case is mild, so my uterus and tubes were always clear. BUT. <br /><br />My FSH levels went down the drain in a big hurry over the course of about a year when I hit about 31/32. I went from totally normal levels to levels that meant I needed to consider donor eggs if I was going to do IVF. <br /><br />I'm REALLY concerned reading your blog (not meaning to scare you at all), b/c for someone with endo, IUI seems to be a complete waste of time. You're right - you are ovulating, DH's sperm is fine, so the issue is not any of that ... it's the connecting and implanting that's the problem (I would assume).<br /><br />It's really frustrating that there are not specialized fertility treatment plans for people with different issues ... every fertility problem is its own can of worms - you can't treat every cancer the same so why would we treat every fertility issue the same?<br /><br />My suggestion is to check your FSH levels pronto - if they are not where they should be, then I'd recommend exploring some different options. <br /><br />Best of luck. I know how shitty this all is - and don't worry about the venting on your blog. It's where we come to share the hard parts of this journey!Anonymoushttps://www.blogger.com/profile/14896931627340645963noreply@blogger.comtag:blogger.com,1999:blog-3761683084567008890.post-12340143665275440922014-07-19T04:53:20.081+01:002014-07-19T04:53:20.081+01:00Have fun in Finland. I hope that you get your BFP ...Have fun in Finland. I hope that you get your BFP in the next 5 months and don't even need IVF.Jessah @ Dreaming of Dimpleshttps://www.blogger.com/profile/02945119397487785737noreply@blogger.comtag:blogger.com,1999:blog-3761683084567008890.post-23861594296066346542014-07-18T02:42:32.898+01:002014-07-18T02:42:32.898+01:00I'm on day 3 of an injecibles and am hoping th...I'm on day 3 of an injecibles and am hoping this is the cycle where everything falls into place. my first three IUI cycles were Clomid and I consider myself very fortunate that I didn't have any of the awful side effects I read about from others. <br /><br />So very much hoping this works because I'm just not looking forward to IVF.<br /><br />Good luck this month!RHMummyhttps://www.blogger.com/profile/11288679777324292266noreply@blogger.comtag:blogger.com,1999:blog-3761683084567008890.post-33787305152445353822014-07-18T01:22:49.508+01:002014-07-18T01:22:49.508+01:00Thanks so much for your comments! It's so help...Thanks so much for your comments! It's so helpful to have some sounding boards to bounce my wildly whirling thoughts on.<br /><br />I think we'll opt for the free treatments for now, as frustrating as it is, because quite frankly they are free. And having just read Amateur Nester's list of treatment prices (in the US) for a humble IUI cycle I found it made my head spin and caused me to be super-grateful that we are actually getting any of this for free, no matter how poorly the treatments are dished out.<br /><br />And in the greater scheme of things, perhaps six more months isn't such bad news, after all. I don't suffer from premature ovarian failure so presumable my eggs will remain almost as good (or bad!) as they are now even a couple of months down the line.. And after we've exhausted the NHS, if need be, I guess we can pull out the the big private guns and make sure that we take the no regrets route, if that feels like the right thing to do at that point.<br /><br />As for success rates and league tables, the NHS (as far as I know) doesn't seem to have to publish any such things in relation to fertility treatments (please someone correct me if I'm wrong, as I'd love to know the figures for our clinic). In fact the NHS is terrifyingly secretive about these treatments. I wasn't able to find any information about what treatments were available in our borough (it's all a giant post code lottery out here) and therefore had to attend out first appointment with baited breath braced to be told that we'd be entitled to zilch. Luckily we live in one of the luckier boroughs and are entitled to 4 IUIs, 1 IVF and 1 FET, although there are some boroughs where people are entitled to up to 3 rounds of IVF on top of the IUIs. <br /><br />So there we go. Decision has been made. I'll try to moan and whine a little less and count my little blessings instead.Haislahttps://www.blogger.com/profile/00447101581192623859noreply@blogger.comtag:blogger.com,1999:blog-3761683084567008890.post-67930478270441868132014-07-15T20:08:00.412+01:002014-07-15T20:08:00.412+01:00I can completely understand taking some days to wa...I can completely understand taking some days to wade through that ocean of information! I am sorry all the answers weren't exactly what you'd expected or hoped for (and that they didn't just magic-wand you pregnant immediately, that would be ideal.. I keep hoping that'll happen when I go to the clinic, but no magic so far). <br /> As for the spend-my-money or jump-through-your-hoops debate, I'd go with the free care for at least the next six months, which will see you through that first IVF (if needed, perhaps not!). That's just my two cents, but if you can spend your own money after, but will void the free cycle if you do your money first, then I'd go with their plan first were I in your shoes. The other thing to consider is there's no guarantee a private clinic would get to an IVF any faster: there are hoops on all sides, I have learned. This way you can navigate the health care system, and possibly make connections and initial paperwork with the private clinic simultaneously: overlap some hoops maybe? Do your clinics have to post their success rates? Ours do here, annually, so you could even check to make sure there isn't a massive discrepancy between the public and private clinics?<br />I hope some of the information has settled in now, and that having a plan, or options for a plan has been helpful! Good luck this cycle: enjoy the break from having relative strangers poke and prod you.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3761683084567008890.post-47940379789469459672014-07-14T16:34:30.911+01:002014-07-14T16:34:30.911+01:00First, abandon the concept of "foolish."...First, abandon the concept of "foolish." Foolish is relative when it comes to IF and treatments. I've been thinking about this question a bit too. As I am in the US, I'm paying for this to some degree or another even though I do have insurance. And I've come down to the idea that I just don't want to regret any choices. So I'm prepared to spend a huge chunk of my savings for this. (Who really needs a downpayment on a house anyway?) Ultimately, you have to decide where that line is because, well... everyone's line is different.<br /><br />Something else which I've found interesting as I've been reading your blog-- the difference between the US and UK health care systems. My insurance has a whole bunch of weird, seemingly arbitrary rules that have prevented/made it difficult to get treatment in what I think is a timely manner. Basically, I've come to realize that neither system is great, because they fail to treat human beings like HUMANS.<br /><br />Keep your chin up, dear. Better things are around the corner.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3761683084567008890.post-26679806837523495112014-07-14T01:15:08.826+01:002014-07-14T01:15:08.826+01:00That's crazy that you NEED to do all 4 rounds ...That's crazy that you NEED to do all 4 rounds of IUI before going into IVF! Lets hope its a blessing in disguise for you though. Positive thinking, right? ;)<br />I am borderline BMI 20 as well. My FS told me not to lose any more weight, but then I lost some when I went into GF diet anyway. We'll see soon if that had any effect in the success of our current IVF cycle...I just hate this balance we need to have between eating healthy and gaining weight, both of which we need to do at the same time - for me its always a battle I easily lose. Hope you have better luck my friend! xxxTwoPlusOnehttps://www.blogger.com/profile/01429596455847160803noreply@blogger.comtag:blogger.com,1999:blog-3761683084567008890.post-31952815927905569032014-07-13T23:01:01.684+01:002014-07-13T23:01:01.684+01:00Wow! This is a lot of information. I don't thi...Wow! This is a lot of information. I don't think you're being foolish at all. Wishing you all the best in making decisions. <3Anonymousnoreply@blogger.com